Patient stories
Engagement of patients and carers in the design and delivery of services is a fundamental principle in all work undertaken under AKC2026.The stories shared by patients, available in the links below, illustrate the challenges faced by kidney patients and how services are responding to patient needs in the provision of patient-centred kidney care.
- Nocturnal Dialysis – Anthony’s story
- Bowen Hospital - eHealth QLD . Supporting dialysis care closer to home.
- My Amazing Body – The Kidneys
Walkabout: moving towards kidney transplant – Glenis Hastie
Related programs
Key kidney care stakeholders that regularly inform the work of Advancing Kidney Care 2026 (AKC2026) include the Statewide Renal Clinical Network (SReCN) Kidney Health Australia, the Australian and New Zealand Society of Nephrology (ANZSN), the Renal Society of Australasia (RSA) and the Australia and New Zealand Dialysis and Transplant Registry.
The Statewide Renal Clinical Network (SReCN) is an independent point of reference, for clinicians, Hospital and Health Services and the Department of Health. SReCN guides quality improvement reform and supports clinical policy development. The emphasis is on evidence-based practice and clinical consensus to guide implementation, optimisation and provision of high-quality patient focussed health care.
SReCN is an important stakeholder in the work being carried out by AKC2026.
Kidney Health Australia is a not-for-profit organisation dedicated to helping people with kidney disease, with a view to improving their health outcomes and quality of life, and that of their families and carers.
ANZSN - Australian and New Zealand Society of Nephrology vision is to promote optimal kidney health for people in Australia and New Zealand through:
- Supporting kidney research across the full spectrum of basic science, clinical, health services and population health research
- Providing education for physicians, trainees, scientists and allied health practitioners to ensure the highest professional standards in the practice of nephrology
- Promoting high-quality care for all people with, or at risk of, kidney disease and their families and carers through education, advocacy and evidence-based practice.
The Renal Society of Australasia (RSA) aims to advance the care of people with kidney disease and to be the peak body for renal nursing and related allied health professionals.
The Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) is a clinical quality registry that collects and produces a wide range of statistics relating to the outcomes of treatment of those with end stage renal failure. ANZDATA has been in operation since 1977. All renal units in Australia and New Zealand contribute data to ANZDATA. The Registry’s fundamental purpose is to report on the incidence, prevalence and outcomes of dialysis and transplant treatment for patients with end stage renal disease across Australia and New Zealand.
