1. Casarett DJ, Crowley R, Hirschman KB. Surveys to assess satisfaction with end-of-life care: does timing matter. J Pain Symptom Manage 2003; 25 (2): 128-132.
- Sent bereaved relatives surveys 2 and 6 weeks after the bereavement and found no difference in terms of RR or self-reported level of distress.
2. Thompson GN, Chochinov HM. Methodological challenges in measuring quality of care at the end of life in the long-term care environment. J Pain Symptom Manage 2006; 32 (4): 378-391.
3. The following references relating to CODE.
CR Mayland, H Mulholland, M Gambles, JE Ellershaw. How well do we currently care for our dying patients in acute hospitals. The views of bereaved relatives? BMJ Support Palliat Care. 2017 Jan 17. pii: bmjspcare-2014-000810. doi: 10.1136/bmjspcare-2014-000810. [Epub ahead of print]
A Germain, CR Mayland and B Jack. The potential therapeutic value for bereaved relatives participating in research: An exploratory study. Palliative and Supportive Care 2016 Oct;14(5):479-87. doi: 10.1017/S1478951515001194. Epub 2015 Oct 29.
CR Mayland, C Lees, A Germain, B Jack, TF Cox, SR Mason, A West and JE Ellershaw. Caring for those who die at home: the use and validation of ‘Care Of the Dying Evaluation’ (CODE) with bereaved relatives. BMJ Support Palliat Care 2014;4:2 167-174 Published Online First: 28 March 2014 doi:10.1136/bmjspcare-2013-000596
CR Mayland, EMI Williams, J Addington-Hall, TF Cox and JE Ellershaw. Assessing the quality of care for dying patients from the bereaved relatives’ perspective: further validation of ‘Evaluating Care and Health Outcomes – for the Dying’. J Pain Symp Manage 2014; 47 (4): 687-696.
C Lees, C Mayland, A West and A Germain. Quality of end-of-life care for those who die at home: views and experiences of bereaved relatives and carers. Int J Pall Nurs 2014; 20(2): 63-68.
CR Mayland, EMI Williams, J Addington-Hall, T Cox and JE Ellershaw. Does the ‘Liverpool Care Pathway’ facilitate an improvement in quality of care for dying cancer patients? Br J Cancer. 2013 May 28;108(10):1942-8.
CR Mayland, EMI Williams, JE Ellershaw. Assessing quality of care for the dying: the development and initial validation of a postal self-completion questionnaire for bereaved relatives. Palliative Medicine 2012; 26 (7): 897 – 907 (on-line issue ahead of print November 2011)